Lupus may I?

I can remember it like it was yesterday. The kids running  on to the playground, scrambling to get in line, waiting anxiously for “mother” to get into position.  One by one they asked permission to move ahead, one step, three steps.  They were extremely compliant.  There was no discussion like there sometimes was in the classroom.  I “mother” was in complete control.  They moved forward at my whim.  If they got carried away and  moved forward without getting permission it was back to the starting line for them.

For many of us, life with lupus is  just like the game Mother May I.  We  find ourselves asking lupus, or whatever chronic illness plagues us, for permission to do everything from getting a shower to going shopping.  If we become overly enthusiastic and don’t ask permission, we can feel as though we are being punished when we struggle.

We learn quickly there are things we can and can’t do with those things prone to change at a moments notice.  Unfortunately, like the children on the playground, it is easy to become overly compliant  causing lupus to gain more of the upper hand in our lives.

While we may not be able to change our symptoms, we can choose to shift the power of control out of the hands of lupus and into our own hands.  It all starts with a choice to no longer play the game and a decision to take the control of our  lives back.    No more crawling back to the starting line because lupus said so.  The decisions come from us as we carefully consider what we can and can’t tackle each new day.

In the weeks to come we will discuss strategies that can help us reclaim our lives.  We may have to live with lupus right now but we do not have to live under its thumb.

Be blessed.  Leslie Rose K



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