BACKGROUND

My name is Leslie. I am married and have one daughter.  I was diagnosed with systemic lupus in the fall of 2002 at the age of 43. For someone who was always on the go this was a huge adjustment.  Being an independent person it was and sometimes still is, hard to ask for help.  That may be a good thing because it helps push me out of the rut that chronic illness can  put me in.

Early on I found the book Being Sick Well by Jeffrey H. Boyd. It helped me put things into perspective.  I knew I needed support but more than that I knew  there were others in the community that needed support also. Starting in May 2007 I began to facilitate a Lupus support group for five years for the  Lupus Foundation of PA.

I love to quilt, do wool applique and make handmade cards.  I also work with a life changing program-Family Group Decision Making. For more on my story, go to archives and select March 2011. There, you will find my journey with lupus written in three parts.

Feel free to leave a comment on subjects you would like to see discussed here or questions you may have.

I hope this blog will be a help and a blessing to you.

Blessings,  Leslie Rose K

 

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6 responses to this post.

  1. Posted by Brenda on November 9, 2010 at 5:36 PM

    I to was diagnosed with systemic lupus and after taking care of a family of 8 and being on the go from early morning until late night to I found myself hardly able to function. I thought I was losing my mind, I didn’t know how to tell a doctor what was wrong with me. So I didn’t say anything. Then a doctor notice something wrong with my blood after a surgery and that’s how the ball got rolling. Now at least I know that I’m not crazy and I am looking forward to reading this blog! I can tell you the my support group make a huge difference, it helped me to know what I am feeling is normal. Normal feels good again!! I want to take control over my life once again and not let this disease rule me.

    Reply

  2. Leslie: This month I am spotlighting a different lupus blogger each day, and yours is the blog I highlighted today. I trust you will like the summary I wrote about your blog, the selected quotes and pictures I copied to illustrate today’s piece.

    Thanks for your inspiring and uplifting perspectives and sharing your faith-filled journey. Today, I hope to expose my readers to your outstanding lupus blog.

    Have a wonderful day! LA

    Reply

    • Thank you for including me in your month of special blogs. I appreciate it. I am thrilled to be one of your favs. That is an encouragement to me. I find blog writing to be a quite a commitment. Great write up. Thanks again. Many blessing. Leslie

      Reply

  3. I found your blog as I was awaiting my lupus test results. This was the second set of blood work in less than 8 months. I just got my results and everything is negative but I have been diganosed with “skin” lupus. In my panicked state your blog was the shinning light that made me realize no matter what the outcome I would be ok. Thank you. You are doing a beautiful thing.

    Reply

    • I am so glad that my blog was able to comfort and encourage you. I hope you will follow me and explore the blog for other posts that speak to you.You are not alone. Thank you for taking the time to encourage me today. Many blessings, Leslie Rose K

      Reply

  4. Leslie, I just want to thank you for your support for my blog, Lupus Adventures Between the Lines. The annual report from wordpress.com showed that you were the number one most common commenter in 2014. Thanks for being you and thank you for sharing! LA

    Reply

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